When is Emma coming home?

We all want to know, some ask it, others don’t! I don’t have an answer unfortunately, and that’s why I dislike the question! It’s a reminder that at the moment her hospitalization is indefinite! Yes, that is the negative way to see it – I told you I can be very negative!

The better way, the “glass half full” way is to say she could come home anytime!! You choose!

We are hoping to get some idea of the airway solution this week, and then of course whatever that is will need to be carried out and she will need to recover from it.

At the same time her feeds will need to go up to 20ml per hour, she will need to keep it down and also grow to show effective absorption of the nutrients. She’s back on course with her poops again, so that’s great!

Last night she had numerous episodes (despite a quiet day and another quiet day today!) At one point she turned blue, according to the nurse. Not good. To be honest there could be other causes that we don’t even know about! The remedy for all seems to be for her to grow and get older, but that’s in God’s hands and time!

That said, she gets cuter each day, more alert and demanding! Thankfully she is very popular with the nurses and Emma (aka Em, Miss Emma!) gets lots of loving attention!

Here’s a picture of Emma relaxing with Daddy (she’s wide awake here!!):