Life is not always what you imagined it to be, but when you put your hope and trust in Jesus, life will be more than you could have ever dreamed.
Monday, June 30, 2008
Missed it
She's definitely been teething then, I guess we'll have to see if the vomiting continues!
The difference a day makes
We had dinner at the new Olive Garden (delicious) and then browsed the books at Borders! They had some clearance racks of books and Scott saw just how much I love books! I don't normally buy them as they're so expensive but these were $4/$5 each! I even got one on the Kings and Queens of England, something I've always been curious about.
On Sunday we helped our friends pack their moving truck and spent some time with them. It's so sad to see people leave, but having made a big move myself I know how wonderful it can be.
This week I am working on resovlng my laptop issues and should have it back by the weekend. We also have an appointment at the hospital with the pulmonary doctor.
Emma has been throwing up pretty much every day, sometimes more than once. In most babies that is caused by reflux so no big mystery, but in Emma's case we believe there is no reflux. We need to find the cause and Scott and I believe she is gagging on the extra drool from teething. The gagging is making her throw up. Hopefully Dr. R. will be able to suggest something, other than me suctioning her all night!!
I'll keep you posted!
Saturday, June 28, 2008
Beach Baby
We put down a blanket and popped up the new tent. She didn't like it too much at first, but after a while (and with all her toys) she was soon relaxing. We were even able to get her to take a long nap!
We did introduce her to the water, but it was cold and she just screamed!
Here's the pictures I know you want to see!
Friday, June 27, 2008
Thursday, June 26, 2008
Beach baby
Wednesday, June 25, 2008
So close
Not last night! Firstly, we are waiting for a delivery of supplies and the probe for her monitor is on it's last legs, consistently not picking up. In anticipation of this we had Emma in our room last night so I could reach the monitor without getting up.
Despite all the negatives, Emma just gets cuter every day! She seems to be talking more and doing some ineresting things with her hands like playing with her feet, clapping and waving - though not on demand!! All the frustration dissipates instantly when she touches your face or even just looks up at you with those huge hazel(!) eyes.
Tuesday, June 24, 2008
Windows Vista
There are rescue CDs I can buy which is still less than buying Vista, and he also said I can get the files of the hard-drive without losing them!!
Good news!!!
Long time no see!
The game was north east of the city in 90 degree weather, so we weren't sure how Emma would do. We were there for about 7 hours - that means you have to include both feeds and pumping in the mix! Emma coped well, and there was plenty of shade which made the heat quite pleasant. I do struggle with pumping on the road and had to dump the milk as there is nowhere to store it.
Sunday
We went to the hospital for the annual reunion of all the families that had fetal diagnoses. It was a morning event and they had a carousel, moon bounce, climbing wall and fire engine for the kids. Special guests included Scooby Doo, Elmo and others! Emma was olivious but next year she should have alot of fun! We got to see some of the doctors and staff that treated me during the pregnancy.
Dr B. delivered Emma, and Jane was our ultrasound tech
We then had lunch with friends that are moving away next week. Todd and Tammi - we'll miss you guys!
Then to dinner at Scott's parents house, an early birthday gathering - he turns 26 on Wednesday!
Cruel, but so cute!!
Continuing storylines are:
Laptop requiring repair
Blocked bathroom sink (again!)
Friday, June 20, 2008
W**?
Thankfully we know there is no reason to dwell on why! After all, we rarely get answers. The key is to realize that God will use the situation to grow us and to bring glory to his name. For that we are grateful!
Here are some pictures from the hospital...
And this really cute video form yesterday. (Yes, she is on the counter!! Don't judge me - I didn't leave her!!)
Thursday, June 19, 2008
All is well
Wednesday, June 18, 2008
Hiccup
She woke me up at 3.30am and kept me up until 5am. Back up at 6.30am she was trying my patience! I brought her into our bed hoping to cuddle her to sleep - to no avail.
After about 20 minutes she made a noise like she needed to burp. I sat up to get the syringe and she threw up. It even got me in the face - 2 feet away!
I called the hospital, as instructed and we are going in for an esophogram (barium swallow) at 1.30pm. Until then I have to deal with a clingy baby and fatigue!!
Please keep us in your prayers today.
Tuesday, June 17, 2008
Not long after we went out Emma's OT Maryanne arrived and we had the therapy session on the lawn!
She is sitting up unsupported for quite a long time now and Maryanne was very excited. What's next? Crawling! We have some work to do though, Emma hasn't quite worked out how her legs work. It could be a while, it could be a week, who knows. What's important is she is determined to catch up with her peers!!
Monday, June 16, 2008
Today Kimberly came over to watch Emma while I made a start on cleaning the basement/Scott's workshop. Apparently it's very humid outside, so staying in was a pretty good option anyway.
Last night Emma showed her daddy just how good she is at sitting up...
Sunday, June 15, 2008
Weekend Update
Scott went to the church as he does every Friday, to help with the youth group and this week I went too, to take some pictures of the different groups that meet. The youth were playing football (aka soccer - I'm English, sorry!) with a giant ball and lacrosse nets!! I couldn't resist joining in.
Afterward we took them all to Dairy Queen for ice-cream and water (we're responsible adults don't cha know!!) Here are some of the great kids we have had the pleasure of hanging with
Bottom row from left: Kali, Erika, Christina (adult plus baby on board!), Kevin, Nana and Scott (semi-adult!)
Saturday...
Scott was working again (what a trooper!) so Kimberly and I left Emma to entertain her grandparents while we test drove a bunch of cars!! We're really just looking for when we decide to upgrade, but I did see one I like!!
Later on Emma and I joined Scott at our friends house, where he was helping put in a new door. We were invited to stay for dinner and Emma got to sit at the table with us like a big girl!!
Sunday... (Father's Day)
Now, if on Mother's Day mom doesn't have to take care of the kids, it should stand to reason that on Father's Day dad takes care of the kids - after all, that is the opposite of normality!!! ;-)
Of course I wasn't trying to pull that one, so after letting Scott get a good nights sleep Emma gave him a "World's Best Dad" keychain and an IOU for a new power drill (they'd sold out!!)
And the first photographic evidence of Emma sitting unaided, for Grandma and Grandad!!
Friday, June 13, 2008
Milestone
We had our first playdate today! We met up with Jessica and her son Francis, who I met on Monday. We went to a coffee shop in a nearby town and sat outside (in the shade) with the babies. Of course I put Emma in one of her cutest dresses, a woman must make a good first impression!!
Francis and Emma eyed each other with curiosity, but not nearly as much as their own feet! It was fun and we will hopefully do it again next week.
On a different note, it seems our refrigerator is not working well and is failing to keep things cold - not good when the baby's milk needs refrigeration! I called the company - yes, we have a warranty!! They said they could send someone out on the 25th. WHAT????
You guessed it, wrong as it may be, I played the baby card! They are coming on Monday. I didn't tell them we have our old refrigerator in the basement - I can't keep running down there leaving the baby by herself for two weeks!
The concern is that we may need to move the refrigerator out and that could be tough - we barely got it in there!!
Cave in
Thursday, June 12, 2008
Babies throw up all the time and I am used to it with our friends children, however when Emma does it it is quite traumatic for me! She does give a warning sound which is the same as when she has wind!! It is quite a game of Russian roulette to know if she'll throw up or not!
If she does throw up again we will be going in for an x-ray to see if the nissen (fundoplication) has come undone!! Keep her in your prayers - I'm sure it's scary for her too.
On a different note, while I was waiting for my appointment (a check-up, nothing more) a woman with a 6 week old (Awww, so tiny!!) asked me how old Emma was. I told her - 7 months, but was hesitant at first to engage in conversation. It wasn't that I didn't want to talk to her, I was actually trying to spare her! When people ask about Emma it always seems to end up with her story, which although it is very encouraging and inspiring for some, it is certainly a little more than small talk - especially for someone with a baby!!
Although, it's pretty hard to hide that something is different when your baby has a tube coming out the bottom of her dress which you have to attach to a syringe as she pushes air and milk out through the tube!! (If you haven't seen us wind Emma that will not make sense!!). I often wonder what people are thinking when they see us.
I do know that they sometimes think she may have something like Down Syndrome, which is probably why I want to tell them, she may be small and a bit floppy, but she doesn't miss a beat!!
Tuesday, June 10, 2008
What?
In case your interested, it was worth the effort to get the butterfly replaced - she laughed at it when the wings lit up and it played a tune!!
Today I got Emma some swim diapers - 40% off!! She will not be going swimming, pool or sea though. We had initially thought her eyes might not like it, and that may be the case, but I have also realized she must not swallow any water. We'll stick with the method used on Saturday!!
As for me I have yet to get a bathing suit for the summer. A task as displeasing to me as shoe shopping (yes, that's right!) and cleaning the bathroom!
I would like to take a poll of the parents out there! Do you put sunscreen on your baby EVERY SINGLE time you go outside? I mean, if you are going from house to car to store, for example? I keep Emma covered in her car seat with a light cloth over the exposed half, but I realize it's not spf! I also want to know if it needs to be washed off at the end of the day - sometimes she's so asleep when we get home it's cruel to wake her for a bath!
Please comment or email me on this! Feel free to add any questions - we could start a little forum!!
Monday, June 9, 2008
Gift
Emma was awake her usual time but when I went in to get her she fell back asleep when I put her pacifier in! That worked a second time and meant I got to sleep in (so to speak) until 8.30am!! i needed it - she wouldn't take a nap on Sunday!
Despite the late start I still got out of the house at 9.15am to the local MOMS group. I decided to leave Emma at home this time, as I don't like taking her somewhere by myself until I know the set-up. Grandma came over to babysit, and I was promptly ignored!! Emma knows that Grandma will keep her very happy!
At MOMS most of the children were 2-4yrs, but I did meet another mother with a baby and we will hopefully be able to hang out some time - our kids aren't ready for baking or picking strawberries, examples of some of the activities they do.
Then I ran to the grocery store before heading home.
The flashing light on the machine greeted me with a message that Fred's Footsteps have agreed to pay the entire car repair bill! How awesome is that!
And to top it all off, I got everything done by 1pm (pumping, lunch etc) and put my head down with Emma for an afternoon nap!
It's been a great day!!
Sunday, June 8, 2008
Water baby
In an effort to keep Emma cool we stripped her down to her diaper and bathed her will cool water! Clearly she had the best time of us all!
I'm not sure if Mrs T. had planned for her bowls to be used as a paddling pool!
This week - part 2
No plans today so I tried to sleep in with Emma! I got a little extra sleep, but that was consolation for getting up at 5am!! An eventful first few hours - when I went in to check on the reason for her crying I discovered she'd thrown up again! I started thinking - vomiting, increased de-sats, extra secretions, less gas. Mmm, I think there's a problem with the nissen! So I emailed the doctors.
Emma's surgeon wants to wait and see if they continue before we do anything. Did I mention that we are on first name terms with Emma's [top] surgeon? I'm telling you, it's the best hospital in the world!!
On a different note, Emma and I hit Babies R Us so I could pick up a sun screen for her car seat. Of course we browsed and I picked up a couple of developmental toys for her. It's amazing how much the price of these things add up, and so recently we started using the money that people have given Emma over the past few months. It's funny, but I feel guilty spending her money, even though it's on her!! That's probably a good thing, or she'd have even more clothes!!
Friday
Emma's occupational therapist was really pleased with her progress and showed me some ways to continue the development with a view to crawling and then walking! Emma is very tolerant of all the exercises we do with her, probably because they involve toys!! She's so interested in everything I expect her will will push her to progress!
The two of us went to see friends Friday evening, while Scott was helping with our youth group. We got home around 10.15pm, and she was still awake! i was supposed to have fed her at 10, so I gave her a really quick bath and put her to bed with her food!
Saturday
Emma took a while to get settled in bed, I think 4am was the last time I got up before I woke at 7am. I had expected her to get up at 6am like normal, but she slept until 9am! I fed her right away (I skipped the 6am feed because I knew it would wake her up!) and she fell asleep again for another hour!!
It's going to be 97 degrees today, so we are not going out! (It's 75 in our house!!) Aunt kimberly is coming over to play with Emma so I can start cleaning out the basement to try and sell some of the junk we have down there!! Someone should warn Scott to put his tools away!!!
While Kimberly was here, we Skyped my parents and grandparents who are together. Emma was displaying her new tolerance for sitting and actually sat unaided for at least 30 seconds, (it seemed like 5 minutes!), but then went down and caught her cheek on the corner of the laptop - don't judge me!! It was only a little bump, and no immediate bruise!
Day 7 - Sunshine!
And Scott, well I think he'll need a vacation after this week!
We popped in to see Mum's hairdresser today, who'd heard all about Emma! She also agreed to give Emma her first haircut - not all over, just one area that was much longer than the rest ala Ace Ventura!
Saturday, June 7, 2008
Day 6 - Breaking the rules
While we were away the guys took the kids on a long walk to the seafront. As it's a school holiday this week the fair is in town and they were there for some time. Nicola and I joined them a bit later.
Friday, June 6, 2008
Day 5 - Day out
Thursday, June 5, 2008
Day 4 - Happy birthday Jon
Wednesday, June 4, 2008
This week - part 1
Sunday
After a 29 hour day on Saturday (time change is a nightmare) and just 4 hours of sleep (Emma not caring about the new time zone) I stayed home from church and slept. It felt good! In the afternoon we caught up with family and friends.
I didn't leave the house until 5pm, when it was still 80 degrees! After the cold and wet in England I remembered another reason why I like living here!!
Monday
Emma has forgotten our little schedule and had me up at 4am again! After taking Scott to work (car still in the shop) I tried to get her down for a nap again, no luck! In fact she barely slept all day!
We headed out for her 6 month well visit. She weighed in at 13lbs 5 oz! That's 2lbs in 5 weeks! We can assume the lipids are doing their job, but there may be another explanation...
Tuesday
At 7.30am Emma and I took a walk. I took her in the carrier so that I could move faster and she will get exercise at holding herself up. It was great - sunny, but still only 65 degrees. Could be a great way to start each day - well only after Emma sleeps for 12 hours!! (She woke at 3am but we brought her in with us and she slept through until 6am!
Later on we learned the mechanic had fixed the car. Great? No. We had said not to do anything that was expensive. Apparently he didn't think $1200 was expensive! Can you say "annoyed"? Yes, we have to pay it. And then we will be getting rid of this car before it it totally worthless.
Wednesday
Today was our follow-up at the hospital assessing the progress on Emma's weight gain. They were very pleased with her progress and have increased the volume of her feeds according to her weight. I also changed her g-tube (the part that stays in her stomach!). The one-way valve was leaking and they let me change it so I can do it at home if necessary!
Emma slept the way there and whole way home - not good. She then wouldn't go down for an afternoon nap, which is my time to catch up on everything else. For some reason (probably fatigue) it really frustrated me. I can't even leave her to play on the floor while I get on - she just lays there and stares at me with those big eyes! Some days things just don't go the way you want!
When her physical therapist arrived I was lacking enthusiasm and energy. By the time she left I was feeling 10 times better! Why? She said Emma is doing much better than she had expected and whatever we're doing is working! Seeing her all day every day, I don't notice progress as much and I guess it takes an objective outsider to help you see it!
She has gone from barely lifting her head while on her belly to holding it way up, arms outstretched and grabbing! She also rolled over all the way, without any prompting! I was concerned that she had not "found" her feet yet, but she is starting to pull her legs up - quite a feat when you grew with a hole in your abs!
Day 3 - The visit
I have not been in the UK since November 2006, so it was wonderful to see almost all my family in one place. And of course everyone loved Emma! It wasn't just family though - my Grandma's friends also stopped by to meet Emma. They've been reading the blog too!
Emma took it all in her stride and was very well behaved.
We hope that Emma brought everyone lots of joy, it certainly sounded like it! She certainly is as beautiful and smart as they all said!!!
As always my Grandma put on a delicious feast and we had our fill of favorites like beef stew and jam tarts. I believe I've gained about 5lbs so far, with 4 days to go!
