Emma and I headed into the city for her opthamology appointment and my friend Christina came along! Driving into the hospital for the first time in a week seemed like nothing out of the ordinary (unless you count the many bags that I now have to bring a long - monitor, suction pump, breast pump, diaper bag etc!!)
Emma can not blink and does not close her eyes all the way when she sleeps. This means her corneas are at risk of drying out - blinking smooths our tears over the surface of our eyes to prevent this. We put drops in her eyes throughout the day, but there was a dry patch on her right eye, so we need to use the drops more frequently and put a gel in them at night.
Emma's vision is age appropriate and her ability to keep her eyes straight is actually better than the other kids with Moebius they see. (The missing nerve is one that pulls the eyes to the outer corners, so Moebius can make a person cross-eyed.)
We stopped by the NICU and said "hi" to the nurses. It's only been a week so it was not a big deal!
When we got back Emma had not had a decent nap all morning and I tried to put her down for a nap in her stroller at Christina's. She was restless all afternoon and not happy unless being held. In fact she was crying more than sleeping.
Today's lesson: Babies need decent naps throughout the day! Falling asleep in the car seat does not a rested baby make!
On the plus side, she will likely sleep in tomorrow!! Today I didn't get a wake up call until 5.30am.
Emma can not blink and does not close her eyes all the way when she sleeps. This means her corneas are at risk of drying out - blinking smooths our tears over the surface of our eyes to prevent this. We put drops in her eyes throughout the day, but there was a dry patch on her right eye, so we need to use the drops more frequently and put a gel in them at night.
Emma's vision is age appropriate and her ability to keep her eyes straight is actually better than the other kids with Moebius they see. (The missing nerve is one that pulls the eyes to the outer corners, so Moebius can make a person cross-eyed.)
We stopped by the NICU and said "hi" to the nurses. It's only been a week so it was not a big deal!
When we got back Emma had not had a decent nap all morning and I tried to put her down for a nap in her stroller at Christina's. She was restless all afternoon and not happy unless being held. In fact she was crying more than sleeping.
Today's lesson: Babies need decent naps throughout the day! Falling asleep in the car seat does not a rested baby make!
On the plus side, she will likely sleep in tomorrow!! Today I didn't get a wake up call until 5.30am.
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