There's more...

Dr. E., the orthopedic surgeon that ordered the CT scan called after he looked at the pictures. He was wrong about the atlas vertebrae (glad we didn't worry!!) but there are some anomalies. It "looks" like the circle formed by the bone is incomplete, or "cleft", which may or may not be causing the torticolis.

He seemed comfortable in saying that her torticolis is not purely muscle-based, while most are. It seems most likely that a number of factors are playing into it. As she is able to keep her head straight when she is not tired, I think muscle weakness is a big part. When she starts to droop or fall we'll need to try and give her more quiet things to do. (She had a bruise above her eye yesterday after falling against the bookcase!)

As the doctor suggested, we are keeping our appointment with his colleague on September 10th (pregnancy permitting!!) and will hopefully know what, if any, further action should be taken.

We also had a speech therapy session today and Emma is continuing to do well. She tries to repeat every word you ask her too, which is apparently great, even if she misses the mark a bit. She does have limited tongue movement (for example, she can't poke her tongue out to the right. We don't know if that's permanent.) and who knows what else may be affected by the Moebius, but we have faith she will continue to amaze us! And for sure, she has no problem communicating her wishes!!!