Bowling

Today we went bowling with my friend Kenda and her kids Kaylie and AJ. Emma was excited to go bowling again and since we get two free games every day, I'm sure we'll be going a lot this summer.

After a few frames I let Emma carry the 6lb bowling ball herself. I couldn't quite believe she could carry something so big and almost 25% of her body weight. But she did, time and time again...

Considering that she has low muscle tone in her upper body due to the Moebius Syndrome this is pretty incredible. And to see her pushing the ball with her left arm - the one that is weaker and used less, was a double bonus!

In addition to the exercise, Emma is learning about taking turns, waiting and also sportsman-like conduct - she claps and cheers for everyone!! I'll try not to make her competitive like me! I did clap a little louder the time she got a spare!

I did not tell her to do this!!

It was also special that she was able to eat the same snacks as the other kids, chocolate-chip Teddy Grahams, thanks to Kenda! Emma liked them a lot.

Speaking of which Emma ate ground beef (minced beef) last night. Not pureed, actual chunk of it, with spaghetti rings! She's also put crunchy puffs in her mouth and chewing them right up. I can't quite believe how well she's doing, but I'm encouraging it as much as I can.
Toby is such a great baby. He is totally content to sit in his stroller and play with his toys or have a bottle. I know this won't last, but for now, he is simply the best!

My heart is getting very hopeful that the sleep study in July could eliminate the need for the CPAP and nursing. I've also figured out how we could eliminate the night feed, leaving only daytime bolus feeds to wean her off the tube. I may be getting ahead of myself, but it gives me the energy to keep going!