February 28th is Rare Disease Day.  Moebius Syndrome is classified by some as a rare disease.  I, personally, am not a fan of the distinction!  Just being honest.  It has to do with [my] preconceptions of a "disease".  The word, to me, suggests a progressive, life-threatening, contagious illness.  While it may be some of those (not "contagious", not even hereditary!), that's not something I want people to think of when they think of Emma.

That said, I love the graphic the Moebius Syndrome Foundation put out, with a picture from the 2012 conference in Philly!

(She's sitting on the floor in the middle!)