Two appointments today: Dr. B - feeding & nutrition, Dr. W - Neurology. Both doctors were really pleased with Emma's progress and how well she is doing.
Dr B. has instructed us to add a teaspoon of formula to every feed for Emma. This will increase the calories without increasing volume. There was an alternative of just adding fat to the milk, but they don't want her to get just fat, she needs to grow. The formula will also add protein and nutrition. It's also important that she doesn't get fat because it would give her a fatty liver - bad!!
She's getting taller and developing well otherwise. We go back in a month.
Dr W tested her reflexes and other cues. She was impressed with how interactive Emma is, compensating for the lack of eye movement by moving her head. She noted that she is a little weak all over, but for a baby that spent so much time in hospital she is doing great.
Emma really has some great doctors that are so caring and supportive. If only we didn't have to deal with the other side. Insurance.
When we left the hospital we were given a bunch a of appointments. We went to the appointments and the follow-ups that we were given. Only today, for the first time did someone tell me that we needed referrals from her pediatrician for the insurance to pay for them. Anyone know how much it costs to meet with top doctors? Me neither, so you can imagine the anxiety I'm feeling.
We may be able to get retro-active referrals, but cannot guarantee the insurance will accept them.
In the UK there are two main things people complain about - gas prices and hospital waiting times. In the US there are two main things people complain about - gas prices and insurance. So far gas is still cheaper here, so the US still has something going for it! Seriously though, the insurance side of things has been the biggest source of anxiety for me! Why? Because it is dependent on people. Emma's health is really in God's hands, and I'll do everything I need to for my part.
Once again Emma's wonderful progress is tainted by stress!
Emma, on the other hand is carefree, (and nap-free!)...
Dr B. has instructed us to add a teaspoon of formula to every feed for Emma. This will increase the calories without increasing volume. There was an alternative of just adding fat to the milk, but they don't want her to get just fat, she needs to grow. The formula will also add protein and nutrition. It's also important that she doesn't get fat because it would give her a fatty liver - bad!!
She's getting taller and developing well otherwise. We go back in a month.
Dr W tested her reflexes and other cues. She was impressed with how interactive Emma is, compensating for the lack of eye movement by moving her head. She noted that she is a little weak all over, but for a baby that spent so much time in hospital she is doing great.
Emma really has some great doctors that are so caring and supportive. If only we didn't have to deal with the other side. Insurance.
When we left the hospital we were given a bunch a of appointments. We went to the appointments and the follow-ups that we were given. Only today, for the first time did someone tell me that we needed referrals from her pediatrician for the insurance to pay for them. Anyone know how much it costs to meet with top doctors? Me neither, so you can imagine the anxiety I'm feeling.
We may be able to get retro-active referrals, but cannot guarantee the insurance will accept them.
In the UK there are two main things people complain about - gas prices and hospital waiting times. In the US there are two main things people complain about - gas prices and insurance. So far gas is still cheaper here, so the US still has something going for it! Seriously though, the insurance side of things has been the biggest source of anxiety for me! Why? Because it is dependent on people. Emma's health is really in God's hands, and I'll do everything I need to for my part.
Once again Emma's wonderful progress is tainted by stress!
Emma, on the other hand is carefree, (and nap-free!)...
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