Daddy's Little Angel was stylin' for todays hospital appointment!
Dr. R., the pulmonologist is happy with Emma's progress. He said she looks great and he's not worried about the few times her oxygen level dropped, it could even be that the probe wasn't picking up at the time.
An area of continued concern though is Emma's weight gain. Based on the scale today she is only 9lbs 9oz. At the pediatrician last Monday they had her at 9lbs 12oz. Dr. R requested that the pediatrician weigh her every 2 weeks on the same scale so we can see her progress.
If we feed her as much as we are and she still does not grow it may be due to bowel issues or her breathing.
Please join us in praying for Emma's growth and strength.
On another note, my mum told me about a news segment about a 13 year old called Emma in the UK, with Moebius! She apparently has responded to therapies and is able to smile slightly! I'm going to try and find out more about her, not least because she lives so close to home!
An area of continued concern though is Emma's weight gain. Based on the scale today she is only 9lbs 9oz. At the pediatrician last Monday they had her at 9lbs 12oz. Dr. R requested that the pediatrician weigh her every 2 weeks on the same scale so we can see her progress.
If we feed her as much as we are and she still does not grow it may be due to bowel issues or her breathing.
Please join us in praying for Emma's growth and strength.
On another note, my mum told me about a news segment about a 13 year old called Emma in the UK, with Moebius! She apparently has responded to therapies and is able to smile slightly! I'm going to try and find out more about her, not least because she lives so close to home!
1 comment:
Tell Miss Emma to get it together or she's grounded :)
I'm slightly upset that you've been back to CHOP so many times, and I haven't seen you....umm, it's either you aren't stopping or you don't want to see me anymore....*tears*
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