Today we were visited by a nurse who may save my sanity!! Seriously though, she brought us a feeding pump.
What is it? Well, currently we pour milk into a bag with a tube that connects to Emma's g-tube. We hang the bag higher than her and gravity brings the milk in. We can control the speed, but it's fairly crude. The pump will allow us to feed Emma over a period of 7 hours with a controlled speed of 40ml per hour.
Why the excitement? We will set the pump running at 11pm and it will run out at 6am. I will not need to get out of bed to feed her until 9am, or she wakes up - that will likely be 6am!! Between 9am-9pm we will use the current method every 4 hours. It only takes about 20-30 minutes for the milk to go in - slow enough that she doesn't get uncomfortably bloated.
Don't worry, I do realize that I may be awoken for diaper changes or bad dreams, but they are few and far between. Tonight, my friends, I will not be needing my alarm clock!! (Scott's alarm gets us up for church so no fear there!!)
The other great part about the nurses visit was she has worked with a little boy with Moebius before and she was very impressed with Emma's development. She is apparently much more advanced than he was at the same age, and he even had to have Botox to his salivary glands because his secretions were so bad. (Feel free to assume some of the difference is because girls are smarter!!) Of course no to kids, or Moebius cases are the same, but I will never tire of hearing how wonderful Emma is!!
What is it? Well, currently we pour milk into a bag with a tube that connects to Emma's g-tube. We hang the bag higher than her and gravity brings the milk in. We can control the speed, but it's fairly crude. The pump will allow us to feed Emma over a period of 7 hours with a controlled speed of 40ml per hour.
Why the excitement? We will set the pump running at 11pm and it will run out at 6am. I will not need to get out of bed to feed her until 9am, or she wakes up - that will likely be 6am!! Between 9am-9pm we will use the current method every 4 hours. It only takes about 20-30 minutes for the milk to go in - slow enough that she doesn't get uncomfortably bloated.
Don't worry, I do realize that I may be awoken for diaper changes or bad dreams, but they are few and far between. Tonight, my friends, I will not be needing my alarm clock!! (Scott's alarm gets us up for church so no fear there!!)
The other great part about the nurses visit was she has worked with a little boy with Moebius before and she was very impressed with Emma's development. She is apparently much more advanced than he was at the same age, and he even had to have Botox to his salivary glands because his secretions were so bad. (Feel free to assume some of the difference is because girls are smarter!!) Of course no to kids, or Moebius cases are the same, but I will never tire of hearing how wonderful Emma is!!
1 comment:
1. Emma is awesome!
2. It's because she's a girl!
3. Feeding pump=gift from God!
Post a Comment