We had to get up early today as Emma had her follow up with the orthopedic surgeon at the hospital. Our appointment was at 8.40am, but we left at 7.30am to allow for all the traffic you get in school time! We signed in by 8.30am.
While we were waiting Emma was drawing in my notepad at the little baby table. Playhouse Disney was playing on the TV and thankfully Scott was there to follow her around when she got restless.
As the wait went on we started talking to a family sitting near us. They had a 12 year old boy (who I wouldn't have pegged for more than 10) who has been fighting bone cancer for 8 years. They live in West Point NY, so they have a long commute for appointments but feel it's worth it. We shared our stories in part and it was nice to see that other people also see the blessings that come from such trials.
When it got to 9.30am they went to see why they hadn't been seen - their appointment was at 8.15 with the same doctor! Apparently there was a shortage of rooms. Emma went in a bit before 10.30am, but we waited in the room for a while before we saw a doctor.
I had Emma's markers in my bag and let her draw with them on the paper they use to cover the bed. As you can see, Emma wanted to let them know how frustrated she was at the long wait...
Really though, she was so well behaved, especially after such a long wait.
Finally we saw the doctor (and his 3 followers) to discuss the results of the CT scan. He had not met Emma before so he checked her range of motion and relevant body parts to confirm their findings.
After careful review of the CT scan he could not find any serious problems! A little asymmetry maybe, but nothing too important. He concluded that the imbalance in her neck is probably due to the Moebius and unless it gets worse (ie. we see her head falling more often etc) there's really nothing they can do. Likely one side is stronger than the other, so when she gets fatigued the left side of her neck pulls her head down and the right can't compete.
In all this is good news, and shouldn't get worse. Physical Therapy may improve it, but "she will do great!"
Now back to fixing the problem with her bowels....
While we were waiting Emma was drawing in my notepad at the little baby table. Playhouse Disney was playing on the TV and thankfully Scott was there to follow her around when she got restless.
As the wait went on we started talking to a family sitting near us. They had a 12 year old boy (who I wouldn't have pegged for more than 10) who has been fighting bone cancer for 8 years. They live in West Point NY, so they have a long commute for appointments but feel it's worth it. We shared our stories in part and it was nice to see that other people also see the blessings that come from such trials.
When it got to 9.30am they went to see why they hadn't been seen - their appointment was at 8.15 with the same doctor! Apparently there was a shortage of rooms. Emma went in a bit before 10.30am, but we waited in the room for a while before we saw a doctor.
I had Emma's markers in my bag and let her draw with them on the paper they use to cover the bed. As you can see, Emma wanted to let them know how frustrated she was at the long wait...
Really though, she was so well behaved, especially after such a long wait.Finally we saw the doctor (and his 3 followers) to discuss the results of the CT scan. He had not met Emma before so he checked her range of motion and relevant body parts to confirm their findings.
After careful review of the CT scan he could not find any serious problems! A little asymmetry maybe, but nothing too important. He concluded that the imbalance in her neck is probably due to the Moebius and unless it gets worse (ie. we see her head falling more often etc) there's really nothing they can do. Likely one side is stronger than the other, so when she gets fatigued the left side of her neck pulls her head down and the right can't compete.
In all this is good news, and shouldn't get worse. Physical Therapy may improve it, but "she will do great!"
Now back to fixing the problem with her bowels....
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