When the surgeons finally put all of Emma's intestines back and stitched her up it was not really the end of the Gastroschisis. One of the lingering aspects is what her doctors refer to as "stupid bowel." Not such an odd concept that bowel floating around in amniotic fluid for 9 months might be less than perfect!
Her small intestines move very slowly which is why we can't increase the volume of her feeds exponentially. At the other end (about to get graphic!) her colon does not process waste very fast and right now she is dealing with constipation. She poops every 1-4 days, and when she does it hurts her. Imagine if you pooped something the size and shape of your fist that was not much softer than playdoh!
Tonight she was crying because of the discomfort in her bowel so I took her out of bed and held her until it passed. I took her into our room and laid on the bed with her - something we haven't really done since the sleep saga!
For a while I had my eyes closed enjoying the rest and then I just lay looking at her little face by mine. Eyes gently closed, mouth occupied by the familiar green pacifier (sleep time only!). My mind suddenly flashed forward to a time in 5/6 years when a sleepy little girl might fall asleep on my lap, and it hit me, my little baby is growing up.
Don't get me wrong, I enjoy Emma more and more as her personality shines through, and I have some more examples for you below. It was just a tough moment when I thought of all the time we didn't have in those first few months, when you sit at home with your newborn. And then the blur of the months that followed when I was so nervous about her health I rarely took the time to sit still.
I don't feel bitter about it, it was no-ones fault and having Emma is more joy than I can express. I guess I just like to remind myself and others to value the little things we usually take for granted - especially when you're having a bad day!!
Oh, here are the examples of classic Emma I mentioned...


Her small intestines move very slowly which is why we can't increase the volume of her feeds exponentially. At the other end (about to get graphic!) her colon does not process waste very fast and right now she is dealing with constipation. She poops every 1-4 days, and when she does it hurts her. Imagine if you pooped something the size and shape of your fist that was not much softer than playdoh!
Tonight she was crying because of the discomfort in her bowel so I took her out of bed and held her until it passed. I took her into our room and laid on the bed with her - something we haven't really done since the sleep saga!
For a while I had my eyes closed enjoying the rest and then I just lay looking at her little face by mine. Eyes gently closed, mouth occupied by the familiar green pacifier (sleep time only!). My mind suddenly flashed forward to a time in 5/6 years when a sleepy little girl might fall asleep on my lap, and it hit me, my little baby is growing up.
Don't get me wrong, I enjoy Emma more and more as her personality shines through, and I have some more examples for you below. It was just a tough moment when I thought of all the time we didn't have in those first few months, when you sit at home with your newborn. And then the blur of the months that followed when I was so nervous about her health I rarely took the time to sit still.
I don't feel bitter about it, it was no-ones fault and having Emma is more joy than I can express. I guess I just like to remind myself and others to value the little things we usually take for granted - especially when you're having a bad day!!
Oh, here are the examples of classic Emma I mentioned...
Daddy watching Emma while Mummy get's ready for church! (Thank goodness for Playhouse Disney!!)
If you believe I don't spend all day on my laptop you might doubt that when you see my mini-me...
Emma posing for Aunt Julie's camera phone. Can you say "Diva?"

